Tag Archives: doctors

The Surgery

            I had another oral surgery a couple of weeks age, a second attempt at a skin graft to ameliorate recurring infections around one of the zygomatic implants, after last summer’s attempt failed. I scheduled the surgery for after school was over for the year, so I would have time to rest and recover before having to deal with actual people again. We had to take a car service to the doctor’s office because I was going to be on anesthesia for the procedure and therefore wouldn’t be allowed to drive myself home, but Mom came with me for uneventful-ride-with-a-stranger and when we arrived Mom set herself up in the waiting room with a book to read and a sewing project, and the staff took me over to an exam room to prepare for the procedure.

“I stayed home. Thank God.”

There were a lot of Elton John songs playing over the speakers that morning, for some reason. Usually there’s a mix of music from the seventies and eighties, and very rarely from the nineties, but there was something comforting about hearing Elton John’s voice over and over, as if he was hanging out in the room with me and keeping me calm as they put the mask over my nose and started the nitrous and then poked my arms, endlessly, in search of a good vein for the anesthesia. I think there were three needle sticks before they finally believed me that the good vein is in my right arm. The last thing I remembered was the doctor saying, “she’s a cheap date,” and I wanted to stand up and tell him that’s not funny, but I was out. I woke up to instructions about where to hold the gauze to staunch the blood, and how to put pressure on the gauze with my tongue, and then I was taken to the recovery room, given a few envelopes of gauze, and the same aftercare sheet I’ve gotten for every procedure in that office, and sent on my way.

            Almost as soon as I got home, though, I realized that I was going through the gauze much faster than I was supposed to. I can’t remember if I’d ever used all of the gauze in the packet before, but this time my mouth was filling up with blood faster than I could change out the gauze, and blood kept pouring onto my shirt before I could fold up new pieces of paper towel to replace the gauze. I couldn’t speak through all of the blood and gauze and paper towel, so Mom called the doctor’s office for advice and they told us to come back in right away to get the wound cauterized. This day was getting expensive, with our third taxi ride in a row, but I had no choice, so I held a pile of paper towels to my face and stared out the window of the car, watching all the same houses pass by for the third time.

            Then I was back in the exam room and they were syphoning away the blood, and rinsing my mouth with salt water, and the doctor was pressing on the wound so hard it felt like his fist was going to push into my brain. My face must have still been numb from the earlier procedure, though, because even though I was uncomfortable and confused, I wasn’t in a lot of pain, and then the bleeding finally stopped and they washed my face, and gave me another sleeve of gauze, and sent me on my way again. One of the nurses offered me apple juice as I was leaving, but I was afraid to dislodge the gauze and start the bleeding all over again, so I promised I would drink something once I got home.

            Mom and I sat in the waiting room for the next ten or fifteen minutes, waiting for the notification that the car had arrived, and then we took the elevator down to the lobby to meet the driver in the parking lot. I felt sort of dizzy and clammy when I stepped out of the elevator, but I thought it was form getting back in touch with the heat of the day after living in the bliss of air-conditioning for hours (it was 80 degrees Fahrenheit in the real world), so I was sure I just needed to rest against the wall for a second and I’d be fine. I took a few breaths and stood back up and made it another few steps towards the glass doors of the vestibule, where I knew I would really start to feel the heat, but I had to find a wall to lean on again, and then I found myself sitting on the floor, which just seemed silly. I laughed at myself and pulled myself up again, feeling like I was getting a full day’s exercise in one go, but I felt really nauseous and found myself on the floor again. From far away, I could hear Mom asking me if I was able to move my arm, because it seemed that my arm was trapped in the doorway and sticking out into the vestibule, and she was worried I would get hurt, or that I would block someone from entering or exiting, I don’t know. I must have been able to move my arm out of the way, and I must have tried to get up again, but the next thing I remember is being flat on my back and hearing the sound of racing footsteps coming down the stairs. Mom had gone back up in the elevator to get the doctor, and it seemed like the whole team had come downstairs with him. I could hear Mom telling them that I’d fainted and hit my head, which was news to me, and I felt a cold compress on my forehead and an oxygen mask over my nose, and one nurse even had a little electric fan that she used to try and cool me off. They put my feet up on a chair at some point and I heard the doctor say that he’d called for an ambulance, and then there were even more people around me, lifting me onto a stretcher (it’s good that she’s wearing jeans, so we can lift her by her belt loops).

Then I was in the ambulance and they were checking my blood pressure and doing more needle sticks (at least three more tries before they found a vein they could use). Every once in a while, I was able to say something, like, that’s the bad arm, the good vein is on the other side, and I could hear the EMTs asking how old I was and saying, no way, she looks twenty-five (which lifted my spirits, I have to say). They put a neck brace on me, because of the fall I couldn’t remember, and I heard Mom tell them that I’d hit my butt first and then my head, so I was probably okay. They brought me to the nearest hospital, which was literally around the corner, and I remember being outside for a moment and then they pushed my stretcher into the emergency room and transferred me to one of the hospital stretchers, which were all sort of floating around the room, with some make-shift screens put up between them to allude to privacy. They checked all of my vitals again, and took the neck brace off, thank God (because at that moment the brace was causing the most pain), and I had to sign a bunch of digital forms, but I can’t tell you what they were, and then the doctor told me her plan: blood tests to see if I needed a transfusion and a CT scan to make sure I didn’t have a concussion.

            The original procedure had been at 11:15 that morning and we’d returned to the doctor’s office around 3:30 in the afternoon, so we probably got to the hospital around 4:30 pm. There was a nice lady in the bed next to me with an amputated leg who seemed to think I was up to making conversation, and then they gave me saline in one of the many holes they’d made in my arms, and I just stayed flat on my back because even lifting my head felt impossible.

            There was something about those few hours, where I could take in most of what was happening to me but couldn’t really make logical decisions, that felt revelatory. I’d forgotten that this state of being even existed, even though it was a very common state from my childhood, because, I realized, I’ve always read more consciousness and choice into my memories than was really there. I always thought I should have been able to understand things, and should have been able to make better choices, but lying there on the hospital stretcher, I realized how silly that was. The whole time I’d been in the lobby of the doctor’s building, falling and standing back up and falling again, I’d been so sure that I would be able to stand up and walk out to the car if I just tried a little bit harder, and each time I was wrong.

            At some point, Mom got a text from the oral surgeon, who had seen some of my early test results and wanted us to know that the reason my blood sugar was slightly elevated was because he’d put a steroid into my anesthesia cocktail, along with the Propofol and Versed, to extend the length of time the pain relief would last. And that was the first time in hours that I even remembered that I’d had surgery that morning and that half my face was still numb. Eventually, the saline started to do its job and they brought me some apple juice to drink and some disgusting orange Jello to try to shovel into my mouth and they tilted the bed so I could sit up like a human again and see what was going on around me.

Next up, they took me for a CT scan on my own personal stretcher, because they didn’t trust me on my feet even long enough to transfer me to a wheelchair, and I found my sense of humor returning, which was good because I could see my reflection in the elevator door and it was a lot. And then I was back in the Emergency Room, waiting for results. I remember thinking about all of the people I should be calling or texting, and just having no energy to even look for my phone. There was a basketball game, or maybe hockey, on the TV screen in the distance, but mostly I just listened to the conversations around me: the woman with the amputated leg really didn’t like her sandwich, and a woman with cancer arrived in so much pain that her not quite adult daughter had to speak for her, and there was a man with back pain who kept trying to stand up against the nurse’s advice, and a woman I couldn’t see who was angry about something I couldn’t understand.

            Once all of the test results finally came back, the doctor told me that the blood loss and the anesthesia, and having two serious procedures in one day, had caused a Vaso-vagal Syncope (AKA I fainted), and it wasn’t an uncommon response (which is what my brother had said a few hours earlier, when Mom texted him). I was discharged from the hospital after 11 PM, once the doctor was convinced that I could walk without falling down, and we called the car service yet again to take us home. I was starting to feel much better, and therefore much more aware that my poor mother had spent the whole day taking care of me, despite the fact that she was walking with a cane and sitting on a hard chair and really really really needed a nap. We both struggled with the walk from the parking lot when we got home, and I had to sit down twice to rest along the walkway. Our downstairs neighbor, a nurse, met us at the front door of our building and insisted on helping me up the stairs, and I don’t know why I kept arguing with her because I really needed the help. We’d called her earlier to ask her to check on Tzippy for us, and it turned out she’d been waiting up for hours just to see how I was doing.

            The left side of my face was still numb, but I dutifully ate a few spoonfuls of chocolate pudding, because it was at the top of my soft foods diet list, and then I made my way to my bedroom and fell asleep.

“I did not sleep, ever.”

            I hadn’t really believed in the fainting part of Mom’s story, to be honest, until I woke up the next morning and could feel the sore spot on the back of my head from where I’d hit the floor, and the pain from the actual surgery was starting to kick in as well. I looked over the aftercare sheet from the doctor’s office and took the recommended doses of Tylenol and Ibuprofen and made myself some very well smushed tuna with mayo. The pain in my mouth kept getting worse throughout the day, but I was sure the Tylenol and Ibuprofen should be enough to manage it, since the doctor hadn’t prescribed an opiate this time around, and I really didn’t want to bother anyone.

            I was still very disoriented, and exhausted, so I had a lot of time to think over the next few days and I kept reliving those few moments in the lobby of the doctor’s building, and wondering what would have happened if Mom hadn’t been there with me. I would have been just as helpless, but no one would have been there to fill the gap between what I could do for myself and what needed to be done, and that gap was starting to look really vast. And now that I was remembering all of those times as a kid when I couldn’t help myself, and no one else was around to fill the gap, I realized that instead of feeling the grief and helplessness of those moments, I’d filled the space with self-loathing, as if yelling at myself to try harder would suddenly make me capable of doing the impossible. There’s something so terrifying about that space, where there’s nothing I can do and no one is coming to save me, and my mind chose to deal with it by pretending I was wrong, telling me that if I could just push myself a little bit harder, be smarter, older, stronger, taller, healthier, whatever else I was not, then I would be okay.

            But now, seeing myself over and over on the floor in the lobby of the doctor’s building, and realizing there was nothing I could have done, was an incredible relief; as if I was patting my younger self on the head and saying, see, you didn’t do anything wrong, and here’s the proof: when people knew you were struggling and were able to be of help, they came running. I remember being told as a kid that life isn’t supposed to be fair, and thinking that that was just nonsense, because of course life is supposed to be fair, and therefore if I’m not getting the help I need then I must not deserve it. That makes the world make sense. That makes the math work. But maybe the math doesn’t add up in real life. Maybe, more often than not, the gap between what I need and what I get is left unfilled, not out of intentional malice or because it’s what I deserve, but just by chance. Which is terrifying.

            Anyway, I spent the rest of the week resting and recovering, thinking deep thoughts, eating soft foods, and wondering why the Tylenol and Ibuprofen didn’t seem to be doing very much. And then, exactly a week after the initial surgery, I woke up at three thirty in the morning to the taste of blood in my mouth. I put pressure on the wound right away, just like they’d done in the doctor’s office, and I looked up excessive-bleeding-a-week-after-oral-surgery on my phone and tried to feel reassured when it said that if I kept pressing on the wound and stayed upright, the bleeding would eventually stop. Mom got up to sit with me and after forty-five minutes or so, the paper towels I kept stuffing into my mouth started to be less and less soaked in blood, and I was finally able to take some pain medication, and a few deep breaths. Mom went back to bed, but I stayed on the couch in the living room and kept pressure on the wound, just in case. And then, around six or seven o’clock in the morning the bleeding started again. I went through four rolls of paper towels trying to staunch the blood and I finally texted the doctor’s office and was told me to come in as soon as possible. I woke Mom up again and she called the car service, again, and we made it out to the parking lot somehow and arrived at the office sometime around 8:30 am. But, after getting myself out of the car and thanking the driver and closing the car door, I couldn’t take another step. The nausea and dizziness and this strange weakness in my legs were overwhelming. Mom went inside to get help and I sat down on the sidewalk, trying to scoot along the ground to get a few feet closer to the front door, and then the doctor’s assistant arrived with a tech and a wheelchair, and they brought me inside and up to the exam room.

“What the F&%# is going on, Mommy?!”

            The syphoning began again, and it was as if the intervening week hadn’t happened. The doctor was probably in the middle of another surgery when I arrived, so his assistant was in charge of assessing the situation and she gave me fluids through an IV and put me on the nitrous again. Somewhere along the way I heard her telling the doctor, “she’s a faucet,” probably in response to his endless requests for updates while she was busy trying to keep me from drowning in my own blood. Eventually, the doctor decided to cauterize the wound without anesthesia, so he could see where the blood was coming from, he said, and the pain was extraordinary. I was screaming and crying openly and my hands and feet and bottom lip started to go numb, and the doctor said I was hyperventilating and needed to focus on breathing out through the mask more than breathing in and I would have slapped him if I’d had any strength at all. At some point the doctor was standing in front of me and asking if I wanted to go to the hospital and of course, I said no, and then, finally, the anesthesia must have kicked in. I don’t remember losing consciousness but everything became sort of fuzzy. A nurse and a tech stayed with me, changing the gauze religiously until the bleeding had completely stopped, massaging my hands when they went numb again, checking on mom and letting her know I was okay, even bringing her pretzels and coffee in the waiting room.

            Before running to help with the next procedure, the doctor’s assistant told me to stick to a liquid diet for the next few weeks, drinking a lot of Ensure and smoothies to keep my calories up, and I wondered why she was telling me that now, instead of a week earlier. I made a point of asking when I should go back to rinsing with the medicated mouthwash in case the vigorous (recommended) rinsing was also part of the problem, and she said, definitely not today. They transferred me back to the wheel chair and then wheeled me to the waiting room to sit with Mom until the car service could arrive, and then the nurse took me downstairs in the wheelchair and made sure I was safe in the back seat of the taxi before walking away.

            The lesson this time around seemed to be that both me and Mom needed to work on asking for help sooner, and not worrying so much about bothering people, so even before we arrived back home Mom had texted the maintenance man at our co-op to ask if he could bring her rollator down from our apartment (it was actually her sister’s rollator, offered just in case she might need it). I was barely able to stand up long enough to transfer from the car to the rollator, even with help, but it was an incredible relief to find myself sitting on the rollator seat while our maintenance man pushed me all the way around the parking lot and up the walkway (I tried my best to hold my feet up off the ground, so they wouldn’t act as brakes), and we even zoomed along for the last bit, reminding me of childhood visits with Grandpa, driving along in his convertible with the wind in my hair.

And then I was sitting in front of our building, unable to stand, let alone to climb the two steps up to the front door, and forget about the twenty steps up the stairs to the apartment. My downstairs neighbor, the nurse, was home in the middle of the day, fortuitously, and she looked at me and looked at Mom and offered to drive us to the hospital. But I didn’t want to go. I thought, maybe I could just sit there for a few hours until I felt stronger, but my neighbor was dubious and said I’d be safer in the hospital, where they would probably want to give me a transfusion. When I finally accepted that I had no choice – my feet were not walking themselves up those stairs – I also realized that I couldn’t even make my way back down to the parking lot and into my neighbor’s car, so we called for an ambulance.

The maintenance man went to meet the EMTs in the parking lot and brought them to the backyard, where I’d been resettled in the shade, with a bottle of water and a box of tissues (I can’t even tell you how lucky we are in our neighbor and our maintenance man). There were two or three EMTs and they transferred me onto a stretcher and rolled me down to the ambulance, and then the one who looked like a cross between Harry Styles and Harry Potter started the assessment. He couldn’t have been much older than my nephews, and he had tattoos down both arms like Harry Styles, but he had a reassuringly sweet smile and I was pretty sure the bangs on his forehead were covering a lightning shaped scar. He took my vitals, including an EKG, but he didn’t try to put in an IV for fluids this time. My arms were already black and blue from all of the needle sticks the week before, and then again from that morning, so he might just have left it for the nurses to manage later in the ER, when I wasn’t so much of a moving target.

            We went to a different hospital this time, closer to home and with a much bigger emergency room, and the EMT parked me in the entrance hallway and reported my history and vitals to the nurse in charge, and she put two bracelets on my arm, one with my name and birthdate on it, and one in bright neon yellow that said “fall risk.” Pretty quickly they moved me from the assessment hallway to my new parking spot at the end of another hallway, and I started to meet a lot of nurses and techs and doctors. My sense of time was all over the place, but I remember a lot of blood being taken, and I remember drinking apple juice and worrying that the bleeding was going to start all over again.

            The ER doctor asked a cardiologist to consult at some point, and he pulled the skin under my right eye (checking for hidden aliens?) and looked at my blood test results and said I’d probably lost half my blood volume and would need a transfusion. Which meant that the needle sticks had to start again. One nurse even got out the ultrasound wand to try and locate a vein before sticking me three more times, but the pain was excruciating and she still couldn’t find a good vein. Eventually the next nurse, or the one after her, found a usable vein on the back of my right hand, and then she taped the needle in place three times so it wouldn’t move even in an earthquake. By then they had decided to keep me overnight for observation and I sent Mom home to rest (one of the nurses had even brought her a tuna sandwich and some gingerale along the way). More blood was taken (no wonder I needed a transfusion!) and they checked my blood pressure a thousand more times and gave me more apple juice, and I spoke to my brother on the phone and he told me that when they gave me the transfusion, I would be able to hear the memories of the blood’s owner (he reads a lot of sci fi), so I was looking forward to that.

            Mom had reached out to the executive director of our synagogue (one of her favorite people on the planet) so I got a call from one rabbi and texts from the other. I still couldn’t walk, or really stand on my own, but my sense of humor had returned somewhere along the way, and I was taking copious notes in my tiny notebook, and at some point they started the actual transfusion, and then at nine or ten o’clock they transferred me to a semi-private room deep in the ER, where I could watch TV and, to my surprise, was able to fall asleep.

            They woke me up around five or six the next morning and the first thing I noticed was the pain. Whatever anesthesia the oral surgeon had given me in his office the day before was finally starting to wear off, but the nurse needed a doctor’s approval before she could even give me an Ensure, let alone a Tylenol, so it was a few more hours of sitting and waiting in pain while they gave me more fluids through the IV.

            The older rabbi from my synagogue came to visit around ten or eleven that morning, and the younger rabbi texted to check up on me and asked if I’d like to be added to the Mishaberach list, so people could pray for my well-being at Friday night services this week, and I surprised myself by saying yes to that for the first time in my life.

The cardiologist came in to check on me at some point, and had my blood pressure checked in three positions, lying down, sitting and standing up, before ordering more fluids. And, finally, sometime after noon, the cardiologist cleared me to go home. It still took a while before they could remove the IV – which was really well taped in place and therefore hurt like hell when it came out – but Mom was able to get a lift from yet another generous neighbor, and the nurse walked me out of the emergency room for pick up. When I sat down on a bench by the front circle where patients were supposed to be picked up, I realized that I was finally walking on my own power for the first time in twenty-four hours, and then I saw the car and didn’t quite sprint across the parking lot to get into the backseat of the car, and finally, we went home.

            I slept for a long time that afternoon, after filling up on Tylenol and Ibuprofen and Ensure, and when I woke up Mom told me she had called the doctor’s offices asking about pain management, so I guess I must have mentioned the pain to her, but she hadn’t heard back yet, so I took more Tylenol, drank another Ensure, mixed with Fairlife Chocolate Milk to make it more  palatable, and went back to sleep.

            The next morning, the pain was so bad that I couldn’t even drink the Ensure, so I texted the doctor’s assistant and she had the doctor call in a prescription for Percocet and Mom was able to get a lift to CVS to pick it up for me.

            The Percocet did its job, so it was a few days before I realized that I didn’t have my hospital notebook anymore (I was sure it was sitting safely in my pocketbook waiting for me, but I must have lost it among the sheets of the hospital bed at some point), and I felt stupid, because the nurse had specifically asked me if I had left anything behind when I left the ER, and I didn’t think to check for the notebook. But I drank more Ensure and got to work reconstructing events to the best of my ability, though to be honest, everything from the midway point of this essay onward is just a guess.

            As you can imagine, I have some notes for my doctor about what to do differently next time around (on someone else, because I can’t see going through this again, even if this procedure was as unsuccessful as the last one). I still worry that I’m going to wake up with a mouthful of blood in the middle of the night, but so far everything has remained intact.

I’m not sure what lesson to take from all of this, to be honest. I was hoping that writing it all out would give me some clues to bigger life lessons, but for now I’m just grateful that there are so many kind people in my immediate vicinity, willing to go out of their way to help me. Though, I think Tzippy has been taking her own notes on the whole ordeal, so she might be ready to share her life lessons any day now. Fingers crossed.

“I have absolutely nothing to say.”

If you haven’t had a chance yet, please check out my novel, Yeshiva Girl, on Amazon. And if you feel called to write a review of the book, on Amazon, or anywhere else, I’d be honored.

            Yeshiva Girl is about a Jewish teenager on Long Island, named Isabel, though her father calls her Jezebel. Her father has been accused of inappropriate sexual behavior with one of his students, which he denies, but Izzy implicitly believes it’s true. As a result of his problems, her father sends her to a co-ed Orthodox yeshiva for tenth grade, out of the blue, and Izzy and her mother can’t figure out how to prevent it. At Yeshiva, though, Izzy finds that religious people are much more complicated than she had expected. Some, like her father, may use religion as a place to hide, but others search for and find comfort, and community, and even enlightenment. The question is, what will Izzy find?

Under the Weather

            A few weeks ago, Mom was struggling. Her blood pressure kept dropping too low, even when she forced herself to drink the liquids the nurse at the cardiologist’s office had recommended; and instead of needing one nap, or two, she could barely get out of bed. And then, even a sip of coffee was too much to swallow. But she didn’t want to wake me up to tell me she was in trouble, so she waited until I woke up on my own, looked in on her, and freaked out.

We arrived at the Emergency Room around Noon and there was a line to check in, so after making sure she had a place to sit and nurses nearby, I went back to park the car – which I’d left running, with the doors open, because I wasn’t panicking at all. By the time I got back, she was doing her intake interview, and another member of the staff took me aside to sign a few papers – including one that said I promised not to be physically or verbally abusive to the hospital staff (it’s kind of scary that such a document needs to exist, but I watched season one of The Pitt, so I get it). Then they gave Mom a gown, did an EKG, and led her to a stretcher in the hallway, because all of the actual rooms were full; most of the stretcher spots were filled as well, even though it was the middle of the day, in the middle of the week, in the middle of winter.

I stood aside while a nurse took blood and a tech did a portable chest x-ray, and in the meantime, a woman nearby (who was there with her own mother) told me how amazing Mom is, because while they were waiting in line to check in, Mom calmly told the intake nurse that she was having a heart attack. I turned to stare at my mother and she looked sheepish. She hadn’t said a word to me about a heart attack.

Luckily, the EKG and chest x-ray and blood tests all came back clear for any signs of cardiac distress. What they did find, though, was low hemoglobin levels, A.K.A. Anemia. And the doctor seemed to think that all of her symptoms could be explained by that diagnosis: the low blood pressure, the exhaustion, the nausea, even the tightness in her chest and shortness of breath. Her hypothesis was that the Anemia was caused by internal bleeding, because of an ulcer, because of the Ibuprofen Mom’s been taking for pain in her leg and feet, but they would need to do more blood tests and a CT scan, and have her checked out by a cardiologist, just in case.

            Mom kicked me out of the ER just before dark, because I hadn’t eaten or taken my meds before driving her there in the first place, and because I was distracting her from her phone. My hope was that I would be able to rest for a few hours, and then she’d call me to pick her up before bedtime. I stopped at the supermarket to stock up, making sure we had enough coconut water and grape juice to keep Mom’s fluids high, and when I got back to the apartment I found out that Tzippy had thrown up on the floor, right next to Mom’s side of the couch.

            I put the groceries away, cleaned up the floor, and the wee wee pads, and Tzippy’s bed, and then we sat together in the living room, watching TV and waiting for news about Mom. I spoke to my brother, and my aunt, updating them on the situation, and texted constantly with Mom to keep up with the latest events at the hospital. By 8 or 9 o’clock, the nurses told her that she’d have to stay overnight so they could do an endoscopy in the morning, and I finally changed into my pajamas and gave Tzippy her last treat of the day, but neither of us got much sleep that night.

“Only one treat?”

            The endoscopy didn’t end up taking place until early afternoon the next day, and then they found Mom a hospital room and told her she’d be staying for a few days. I packed her a bag (she wanted her weaving supplies, and I had to remind her that she might also need some clothes), and drove back to the hospital, carrying her loom through the metal detector. She was clear eyed, if exhausted, and relieved that she’d finally been allowed to eat, now that the endoscopy was over. The nurses were wonderful, as usual, but they’d had to poke her multiple times before getting the IV in the right spot, so her arms were black and blue. Thankfully, now that the IV was in a good place, they could administer medications without re-poking her, and the stomach protectant and IV Tylenol seemed to be helping.

But there were still more tests to do, and more doctors to see, and Mom and I were both anxious and confused about what was going to happen next. My brother was able to speak to the doctor over the phone and then visit in person to explain some of the things the doctors were leaving out. They ended up giving her a transfusion, because her hemoglobin levels were still low, and more fluids, and then they did more tests and checks and, finally, on day five, they let me take her home.

She already looked better than she had in months, so the Anemia must have been going on for quite a while before it became acute, but Mom was just happy to be home again, to see Tzipporah, and me, but even more so to be free to leave her bed without an alarm going off each time her foot touched the floor. She even committed to her new bland diet, to manage the ulcer, and was inspired to find a similar diet for Tzipporah, to see if that would help her too, and to have a diet buddy, of course.

“I like this diet.”

            Each day since then, Mom has been looking a little bit better and more like herself, though she still thinks she’s resting too much and getting too little done. And Tzippy seems to be feeling better too. They’ve both happily returned to their regular routine of arguing at bedtime: when Tzippy gets three treats and demands a fourth, and Mom tries to hold her ground, and then sprinkles cheese on the kibble, and Tzippy cries because what she really wanted was another chicken treat and why doesn’t her grandma understand?

As I listen to their duet from my room, I am relieved to be surrounded by family noise again. While Mom was in the hospital, I was in a state of suspended animation, checking my phone constantly and feeling like my whole world depended on the next piece of information. And it’s such a relief not to be so anxious anymore, though I’m much more aware now of which doctors Mom needs to see, and how much liquid she’s consuming and which foods she’s not supposed to eat. I’m also much more aware of how annoying it is to have to shovel the car out every time you need to go to a doctor or hospital or pharmacy (or work), when all you really want to do is hibernate under the covers and never see a snowflake again.

“Why would anyone want to go outside?”

If you haven’t had a chance yet, please check out my novel, Yeshiva Girl, on Amazon. And if you feel called to write a review of the book, on Amazon, or anywhere else, I’d be honored.

            Yeshiva Girl is about a Jewish teenager on Long Island, named Isabel, though her father calls her Jezebel. Her father has been accused of inappropriate sexual behavior with one of his students, which he denies, but Izzy implicitly believes it’s true. As a result of his problems, her father sends her to a co-ed Orthodox yeshiva for tenth grade, out of the blue, and Izzy and her mother can’t figure out how to prevent it. At Yeshiva, though, Izzy finds that religious people are much more complicated than she had expected. Some, like her father, may use religion as a place to hide, but others search for and find comfort, and community, and even enlightenment. The question is, what will Izzy find?

Seeing My Psychiatrist on Zoom

            Every three months or so, I see my psychiatrist for a few minutes on zoom (or Doxy, actually, a platform specifically for medical appointments), because he decided not to go back to in-person visits after Covid. He asks me how I’m doing with my antidepressant medications, and I say “fine,” and he takes notes and refills my prescriptions and makes a new appointment for three months in the future, and then we’re done. Of course, there have been times when I didn’t say I was fine, and he raised the dose of one or the other of my medications, which led to a one month follow up instead of a three month follow up, but for the most part, everything has been stable for quite a while. To fill out the four- or five-minute appointment, we tend to chat about my teaching, or my other doctors and the new medications they’ve added to my regimen, but for the most part, he asks me if I think I need to raise the dose of my meds, and I say no, and we wish each other well. But at my latest appointment, when I said a variation of my usual “I’m fine,” he said, “but what does that mean?” and I didn’t know how to answer.

“Do you ever talk about me?”

            In the end, I must have said something reassuring, because he kept everything the same and we made the usual appointment for three months in the future, but when I closed my laptop, I wasn’t sure if “I’m fine,” was really the truth, or just something I’ve gotten used to saying. I don’t remember if I was more willing to go into details back when I actually had to leave the house for those five-minute session every three months, but there’s definitely something about the virtual appointments that encourages me to keep it simple.

            The fact is, I don’t really know if I’m on enough anti-depressant medication, or the right medication. I have no idea if this is the best my mental health can be, or if there are medications or other treatments that could make things better. The few times I’ve been willing to risk changing my medication were when I was feeling so awful that I wasn’t sure I’d be able to function otherwise.

            Antidepressant medications are a mystery, and not just to me. Doctors still don’t really understand why they work, or why one medication works for one person and not for another. It’s a lot of trial and error and guesswork, and a little too much Russian roulette for my liking. When I was first trying medications, years ago, the doctors would try a few from each family of drugs, and I had to spend weeks, and even months, dealing with weird side effects while waiting to see if something positive would happen. There was one medication that the psychiatrist (a different one) insisted on trying even though it was meant for bipolar disorder, which I don’t have, and within 24 hours I felt like I was going to jump out of a window, or at least scream until my head exploded, and I refused to take another dose. The doctor didn’t seem to think my reaction to the meds was all that bad, and he wanted me to stick with it for a least a few more weeks to see what would happen, but I felt strongly that I shouldn’t be taking a medication that made me want to kill myself and he reluctantly moved on to another class of drugs.

            Psychiatrists, and other doctors who prescribe these medications, also tend to be unusually terrible at diagnosis, because there is almost no consistency in how different doctors interpret the words of the DSM (Diagnostic and Statistical Manual of Mental Disorders), and the words used in the DSM are generally unrelated to the way patients actually experience and describe their own symptoms. Sometimes it feels like the doctors are waiting for certain magic words to be said, and don’t know what to make of the metaphors, sentence fragments, and shrugs that real people use to describe how they feel.

            To be fair, medical doctors are just as terrible at diagnosis when they don’t have hard and fast results (from blood tests or scans) to determine what’s going on inside. The pain medication I’ve been on for maybe fifteen years now (after trying a lot of different drugs meant for any number of different diagnoses) has only ever reduced the pain by half, and usually less than that; and the same is true of the psych meds: if they reduce my symptoms by half, that’s a good day.

            In an ideal world, I would sit down with each of my doctors and describe in detail how I feel (what hurts, how it hurts, what I’m struggling with, and what I’ve tried) and be answered with curiosity, understanding, respect and investigative questions to help me pinpoint and articulate my symptoms as clearly as possible. But, to be honest, that has never, ever happened. I have certainly attempted it, with dozens of doctors, but they tend not to hear what I’m saying over the noise of their own assumptions, and it ends up being easier to keep things short.

            I’ve been on my current anti-depressant medications for more than ten years now, and while they have caused weight gain and nervous system disruptions and a bunch of other side effects, they allow me to function most days, and they give me the leeway to do the therapy work that helps me move forward. And for me, to be able to say on an average day that I am fine, that I am not in a panic spiral or falling into depression or obsessing over this or that awful thing coming up in my life, is huge. It allows me to live my life each day and accomplish some of the things that matter to me, and experience joy, and even do the laundry. It may not be miraculous, but, at the very least, it qualifies as fine.

“Have you tried chicken treats? They really work for me.”

If you haven’t had a chance yet, please check out my novel, Yeshiva Girl, on Amazon. And if you feel called to write a review of the book, on Amazon, or anywhere else, I’d be honored.

            Yeshiva Girl is about a Jewish teenager on Long Island, named Isabel, though her father calls her Jezebel. Her father has been accused of inappropriate sexual behavior with one of his students, which he denies, but Izzy implicitly believes it’s true. As a result of his problems, her father sends her to a co-ed Orthodox yeshiva for tenth grade, out of the blue, and Izzy and her mother can’t figure out how to prevent it. At Yeshiva, though, Izzy finds that religious people are much more complicated than she had expected. Some, like her father, may use religion as a place to hide, but others search for and find comfort, and community, and even enlightenment. The question is, what will Izzy find?

Zepbound

            At my most recent visit to the endocrinologist (thyroid issues, etc.), the doctor told me that Lilly has decided to offer Zepbound (a variation on Ozempic) for a discounted price to patients whose insurance companies won’t cover the GLP-1 weight loss medications. The average price for these medications, in the United States, is about $1,000 a month, though in other countries they can be bought for $100 or less, which has come up in contentious congressional hearings of late. My health insurance still refuses to cover these medications for anyone without type two diabetes or a severe heart condition, and I have been waiting impatiently for them to decide to cover GLP-1 medications for Non-alcoholic fatty liver disease, which I was diagnosed with last year, but who knows when that will happen.

            Last year, the endocrinologist told me about a program that discounted Zepbound to half price, but only for people without any insurance coverage, which did not include me. But now, they are making it available to people like me who have health insurance that doesn’t cover the medications. The cost is $400 a month, which is a lot for me, but for the sake of my health I really can’t say no. My hope is that, if the Zepbound works for me, these medications will soon be covered under my health insurance and I won’t have to pay this much for long. Ideally, losing weight will improve the health of my liver and reduce the need for heart medications. I don’t think it will give me more energy, or reduce overall body pain, but you never know.

            To be completely honest, though, what I really want from this medication is to lose enough weight to feel like a normal person. Yes, I want to reduce my risk of liver and heart disease. And yes, I would love to find out that losing weight could give me more energy and allow me to actually live more of my life, but, since childhood, I have been self-conscious about my weight, and I am so tired of feeling like a mutant. I know weight loss won’t change my life miraculously, because I’ve lost weight in the past, when I was able to exercise enough to lose weight on my own. And I’m sure I will still feel uncomfortable in my body, and struggle with pain and depression and anxiety and exhaustion. But it would be great to be able to go to my doctors and tell them my symptoms and NOT have them blame everything on my weight.

            I was on a low dose of Ozempic last year, when my insurance was still allowing it, and I lost fifteen pounds. But as soon as the FDA cracked down on off label use of Ozempic, I was cut off, and within three months I’d gained the weight back. So, one, I know the meds can work, and two, I know I will have to be on them forever.

There’s a lot of fear for me around starting the Zepbound, actually. For some reason, the discounted Zepbound comes in a vial, with separate needles, instead of in pre-dosed pens, so I’m afraid it will hurt more and/or I will do it wrong. I’m afraid I won’t be able to lose enough weight to make a difference in my health, or I’ll get cut off again, because the price will go up or supplies will run out. I’m afraid I’ll be sick to my stomach for the rest of my life (though that’s not very different from how I feel now, to be honest), or that the Zepbound won’t work, or that I’ll lose the weight but I’ll look like a deflated balloon instead of looking, and feeling, healthy.

Maybe most of all, I’m afraid that having to spend $400 a month on this for the foreseeable future, on top of paying off my medical debt, will mean that I can’t really afford a new dog, with all of the vet bills and adoption fees and toys and treats involved. And going too much longer without a dog in the house feels like a risk to my mental health (and to Mom’s). It feels so unfair to have to choose between my physical health and my mental health, especially when they are so intertwined. But here’s hoping I won’t have to choose, and a little, hypoallergenic rescue dog will come along soon, and congress will decide to cover GLP-1 meds for Non-alcoholic fatty liver, and all medical debt will be wiped out, and we will all live in peace and harmony, forever and ever, amen.

A girl can dream. Right?

“I’ll eat whatever you’re not eating. You’re welcome.”

If you haven’t had a chance yet, please check out my novel, Yeshiva Girl, on Amazon. And if you feel called to write a review of the book, on Amazon, or anywhere else, I’d be honored.

            Yeshiva Girl is about a Jewish teenager on Long Island, named Isabel, though her father calls her Jezebel. Her father has been accused of inappropriate sexual behavior with one of his students, which he denies, but Izzy implicitly believes it’s true. As a result of his problems, her father sends her to a co-ed Orthodox yeshiva for tenth grade, out of the blue, and Izzy and her mother can’t figure out how to prevent it. At Yeshiva, though, Izzy finds that religious people are much more complicated than she had expected. Some, like her father, may use religion as a place to hide, but others search for and find comfort, and community, and even enlightenment. The question is, what will Izzy find?

The Ozempic Experiment

Two and a half years ago, I started to work with a nutritionist who specialized in Intuitive Eating. I really wanted to believe that Intuitive Eating would be the answer for me, because I was starting to believe that I would have to be on starvation diets for the rest of my life, and I knew I couldn’t live like that. The nutritionist worked with The Intuitive Eating Workbook, by Evelyn Tribole and Elyse Resch, and had a lot of experience working with people with trauma backgrounds, and autoimmune disorders, and a history of eating disorders, so she seemed like the right person to help me feel safe with food, and feel comfortable in my body, and be able to maintain a healthy weight.

“I can help. Just give me all your food.”

We worked through all of the exercises in the Intuitive Eating Workbook together, charting my hunger and fullness levels, writing down all of my destructive thoughts around food and learning how to reframe them, and overall trying accept that dieting, or restricting food in particular, was not a good long term answer to my problems, given all of the evidence that diets lead to more eventual weight gain. I worked hard at balancing my meals, adding more protein to breakfast, and more vegetables to lunch, and more fat here and there so that I would feel full at the end of each meal. But despite all of my efforts, my weight continued to go up, a little bit at a time, until I’d gained back everything I’d lost on Weight Watchers five years before. The nutritionist said that, given all of my efforts, she was sure I would have been more successful with Intuitive Eating if only I hadn’t been suffering from so many other health problems at the same time, and I tried to believe her, and kept trying.

            And then, a few months ago, I started to get a series of out of range blood test results. First my Adrenal values were high, and the endocrinologist sent me for a CT scan of my abdomen to see if there were nodules on my adrenal glands causing the raised numbers. But my adrenals were clear, and a repeat blood test showed that my Adrenal levels were back to normal, but now my liver values were high. So I was sent to the gastroenterologist, who sent me for an ultrasound of my liver and redid the blood tests, again. The new blood tests said that my liver values were normal, but the ultrasound showed a severe nonalcoholic fatty liver, and both the gastroenterologist and the endocrinologist said that weight loss was the only currently accepted treatment for a fatty liver, and if I didn’t address it now I could end up needing a kidney transplant down the line. But after so many years of trying every diet and non-diet available, I felt hopeless, so they suggested weight loss medication. In the past, the options for weight loss medications were generally too dangerous or unreliable to be recommended by most doctors, but with recent advancements in the field there has been more hope, or at least more things to try. And after all of the doctors’ visits and variable blood test results and finding out about the fatty liver, I was desperate enough to agree to try Ozempic.

            I thought that my nutritionist would be against the whole idea of a weight loss medication, since it goes against the accept-your-body-as-it-is principles of Intuitive Eating, but she was on board immediately, for the sake of my overall health. But I still felt uncomfortable. I’d heard all kinds of the stories about the gastrointestinal side effects of Ozempic and other drugs like it, and there has been so much shame in the air around celebrities taking Ozempic, either because people think that taking a weight loss drug is frivolous or because they think it’s a sign of weak character. I was also worried that my health insurance wouldn’t cover the medication, or that I’d be one of the people who didn’t lose weight on Ozempic, or worse, that taking Ozempic would destroy my ability to enjoy eating, which I rely on heavily to get me through so many other things in my life.

“Puppy kisses help too, right?”

            But my health insurance paid for the Ozempic prescription, and I took that as a sign to move forward with it. I started at a low dose a few weeks ago, and so far there haven’t been any side effects, or any impact at all. I’m okay with taking it slowly, and building up the dose at a pace that my body can handle, but I’m still worried that as the dose goes up so will the side effects, and that even on a higher dose I won’t lose weight, since so many medications that seem to work for other people haven’t worked for me.

            But all I can do now is wait and see what happens, if the Ozempic works for me or not, and if weight loss will return my liver to a healthier state or not. In the meantime, I haven’t given up on Intuitive Eating, because even if it hasn’t changed my body, it has done a lot to change my mind, calming the noise in my head around food and weight and body type, and that relative quiet has left room for more positive thoughts to creep in. And as a result of that realization, I’ve started to adapt some of the Intuitive Eating exercises to see if they can help me create more calm in my mind around writing, where the noise has been even louder than it ever was around food.

Whatever happens, I’m hopeful that progress will continue from all of my efforts, even if I’m not sure what that progress will look like.

“We’re ready.”

If you haven’t had a chance yet, please check out my Young Adult novel, Yeshiva Girl, on Amazon. And if you feel called to write a review of the book, on Amazon, or anywhere else, I’d be honored.

            Yeshiva Girl is about a Jewish teenager on Long Island, named Isabel, though her father calls her Jezebel. Her father has been accused of inappropriate sexual behavior with one of his students, which he denies, but Izzy implicitly believes it’s true. As a result of his problems, her father sends her to a co-ed Orthodox yeshiva for tenth grade, out of the blue, and Izzy and her mother can’t figure out how to prevent it. At Yeshiva, though, Izzy finds that religious people are much more complicated than she had expected. Some, like her father, may use religion as a place to hide, but others search for and find comfort, and community, and even enlightenment. The question is, what will Izzy find?

Cricket and the Big Needle

            Cricket has kidney disease. She had a really bad day recently: she fell down the stairs when she was coming in from a walk, and had to be carried up and down the rest of the day. By the next morning, she was back to herself, climbing the stairs and eating her breakfast and barking at the UPS guy, but we took her to the vet anyway and he checked her out and took blood and the next morning he called to say it was her kidneys, but he’d need a pee sample to know if she also had an infection. I had to follow her around all day with a ladle, collecting a teaspoon of pee at a time and storing it in the fridge until we had enough to bring to the vet. Thank god, Mom didn’t take the picture she threatened to take of this particular activity. The results: no infection, but very watery pee, confirming kidney disease, so we’d have to go back to the vet and learn how to give her sub-cutaneous fluids once a day. With a very big needle.

“I hate needles!”

            Cricket only weighs 9.5 pounds now, down from her original 14 pounds, and she looks like a naked chicken from the neck down, but she still has her rebellious spirit. So as soon as I knew I would have to put a needle under her skin every day, I started searching everywhere for her muzzle. We’d never actually used it before, but we had it somewhere, just in case, because she is a biter. I finally found the muzzle hidden behind her old harnesses and winter sweaters in the hall closet, and she let me put it on her, for a moment, before she started trying to pull it off.

            At our next appointment, the vet demonstrated how to hang the fluid bag on the door, and hold Cricket still, and pull up the extra neck skin like a tent and insert the needle, and Cricket calmly let him do all of this. We watched her neck swell up like a balloon, which he said was totally normal, and then he removed the needle and pinched the skin so that the fluid wouldn’t spritz out. Then he showed me how to change out the old needle for a new one, easy peasy. By the time we got home, Cricket was feeling so good that she skipped down the lawn on her way to the front door.

            My first attempt at giving her the fluids myself, the next morning, went almost as easily as when the vet did it, even with the big needle and the bite-prone Cricket, but on the second day, she rebelled. She bared her teeth at me, and pulled away from the needle, and then she bit me, three times. I tried again later in the day and managed to get the needle under her skin and a small ball of fluid in her neck, before she bit me again.

“You bit me first!”

            On the morning of day three, we tried giving her food during the procedure, to keep her distracted, but she turned the bowl over and spread the food all over the floor and hopped over it to get away from the needle. So, in desperation, we gave her a quarter of a doggy valium, and waited. An hour later I was able to put the muzzle on her, and insert the needle under her skin, and give her the rest of the fluids she should have had the day before. The only problem was that we had no more doggy valium. So off to the vet we went to get more medication, and incidentally, to make sure it was okay for her to take it every day. It was, but even that small amount of ACE (the doggy Valium) made her stumble around and wiped her out for the rest of the day.

“It helps to have somewhere to put my head.”

            A week after starting the fluids, we took her to the vet for another round of blood tests, to see if the fluids were helping, but when the doctor called the next morning, it turned out that her kidney numbers were worse. He told us to keep doing the fluids, with some added B vitamins, and he gave us Gabapentin to try instead of the ACE, to see if the combination would give her more good days. He had no prediction for how much time she has left. He just told us to keep an eye on her eating habits, and if she doesn’t eat for three days in a row then that would mean she’s suffering and it will be time to let her go.

            We tried the gabapentin to no effect, so we went back to the ACE, but decided to give it, and then the fluids, at night, so that she could sleep it off and wake up feeling better, and that seems to be working better for her.

            I don’t have high expectations, but I’d like for her to enjoy the end of her life as much as possible, and I’d really like to have a little more time.

“Where’s the rest of the chicken?”

If you haven’t had a chance yet, please check out my Young Adult novel, Yeshiva Girl, on Amazon. And if you feel called to write a review of the book, on Amazon, or anywhere else, I’d be honored.

            Yeshiva Girl is about a Jewish teenager on Long Island, named Isabel, though her father calls her Jezebel. Her father has been accused of inappropriate sexual behavior with one of his students, which he denies, but Izzy implicitly believes it’s true. As a result of his problems, her father sends her to a co-ed Orthodox yeshiva for tenth grade, out of the blue, and Izzy and her mother can’t figure out how to prevent it. At Yeshiva, though, Izzy finds that religious people are much more complicated than she had expected. Some, like her father, may use religion as a place to hide, but others search for and find comfort, and community, and even enlightenment. The question is, what will Izzy find?

More Doctors

            For a few weeks, recently, my mother was worried about me. Okay, she’s always worried about me, but more worried than usual, because my blood pressure was high. My blood pressure has been relatively high since December, but my primary care doctor wasn’t especially worried, so I ignored it. But then I went to the gastroenterologist, to finally see about my first colonoscopy, he said I’d need an okay from the cardiologist before he could move forward; so I went to the front desk and made an appointment with a cardiologist in the same office, where the wait is approximately an hour and a half and the doctor generally ignores whatever I say.

            But while I was waiting for that appointment to arrive, my blood pressure (measured on a home blood pressure monitor), kept going up and up, especially the bottom number. And Mom said I couldn’t wait for my scheduled appointment and instead made me an appointment with her own cardiologist, for the next morning.

“I could ignore you without all the waiting!”

            I got up early and grumbled as she drove me to the doctor’s office, and then I grumbled through the tech taking my blood pressure four times, twice on each arm, and then through an especially thorough EKG, and then there was an Echocardiogram in another room and blood tests in a lab down the hall. I was exhausted from the whole ordeal, but I had to go to work afterwards, so I grumbled as much as I could at home and then switched into teacher mode on the drive to the synagogue and tried not to grumble for the rest of the day.

“Unsuccessful, Mommy.”

The next day, after tests showed I didn’t have a blood clot or heart damage, the cardiologist prescribed a diuretic and told me to call my gynecologist to see if she could change or just stop my birth control pills (prescribed for Polycystic Ovarian Syndrome and painful periods), because they could be raising my blood pressure and adding to the risk of blood clots.

            I started the diuretic the next day, and stopped taking the daily birth control pills, and after a week, my blood pressure was back to normal, but I was dizzier than usual, and in more pain and still dealing with all of the other long term issues no one has been able to explain (headaches and dizziness and exhaustion and muscle pain and intermittent walking problems and nausea and belly pain).

            Then I had to go for more blood tests and an echo stress test (which is a beast of a combination, with a treadmill and a thousand wires and a torture device rammed into my rib cage at random intervals), and I was told that my Normetanephrine and Aldosterone numbers were off kilter, both related to the adrenal glands in some way, and a possible cause for the high blood pressure, and I’d need to see an Endocrinologist and a Nephrologist for further testing. No, wait, not an Endocrinologist but a Gastroenterologist, but not the Gastroenterologist doing the colonoscopy…oy. So I had to put off the colonoscopy, which means I’ll have to go for an extra consult closer to the colonoscopy or else the insurance won’t cover it, and then there’s the new Gastroenterologist, who is hopefully the right doctor and not a miscommunication, and then I may still have to go to a Nephrologist, and who knows how many tests and appointments will come from all of that, or if I even have an issue with my adrenal glands, or if it’s at all related to the rest of my symptoms or yet another tangent.

And, yes, I know I have to do all of it, of course. But I’m so tired, and I’m in more pain than I was before, and I still have to teach, and the weather is getting warmer, which makes everything worse, and… I clearly have a whole lot more grumping to do before this is over.

Harrumph.

“Harrumph.”

If you haven’t had a chance yet, please check out my Young Adult novel, Yeshiva Girl, on Amazon. And if you feel called to write a review of the book, on Amazon, or anywhere else, I’d be honored.

            Yeshiva Girl is about a Jewish teenager on Long Island, named Isabel, though her father calls her Jezebel. Her father has been accused of inappropriate sexual behavior with one of his students, which he denies, but Izzy implicitly believes it’s true. As a result of his problems, her father sends her to a co-ed Orthodox yeshiva for tenth grade, out of the blue, and Izzy and her mother can’t figure out how to prevent it. At Yeshiva, though, Izzy finds that religious people are much more complicated than she had expected. Some, like her father, may use religion as a place to hide, but others search for and find comfort, and community, and even enlightenment. The question is, what will Izzy find?

Living at the Dentist’s office

            Lately I’ve been living at the dentist’s office, or the oral surgeon’s, depending on the week. First there were regular checkups to see how I was healing from this summer’s oral surgery, and then at about the three month mark a crack appeared in the temporary upper teeth, not visible on the outside, and, luckily, the oral surgeon had been testing out his own 3D printer this fall and made a second version of my temporary device, so it was available to be switched out for the cracked one. And after that, I had to start the process of going from a temporary implant to a permanent one, which means molds and try-ons and who knows what else.

            But in the meantime, I also had regular cleanings, and more extractions, because my bottom teeth were jealous of all of the attention the upper teeth had gotten, and I had to get a temporary tooth, called a flipper, to fill the empty space up front, so now I have to be even more careful about what I eat, so I don’t accidentally pull out the flipper and swallow it with my dinner.

“That doesn’t sound yummy at all.”

            I wish this was all as entertaining in real life as it looks on paper.

The bone and gum loss in my mouth is so premature and seems to be a big honking clue that there is some underlying systematic disease process at work in my body, but no one can explain it or tie it to a specific diagnosis. So I continue to lose my teeth, and I continue to get more and more exhausted, and nothing I try seems to be able to slow this process down, let alone reverse the damage already done.

            I’ve also had to go for blood tests, and a mammogram, and a gynecological checkup, and there’s the oral pathologist and the primary care doctor and the gastroenterologist coming up, and, of course, the continuing dental visits.

And I’m tired. I’m tired of having to spend money on my teeth, and on tests and supplements, and I’m tired of having to spend so much energy and time going to doctors and researching potential diseases and treatments, without success.

            My nutritionist mentioned that someone she knows, with similar autoimmune issues to mine, had some success with Low Dose Naltrexone (the regular dose, which is prescribed to interrupt opioid addiction, is covered by insurance, but the low dose is an off label use and therefore only available at a compounding pharmacy, and therefore not covered), so now I’m doing research online and asking my various doctors what they know about that. But I’m worried that either the doctors won’t prescribe it, or that they will and then I’ll spend more money and time on yet another possible solution and get no improvement.

And in the meantime, my micro-part-time job is getting harder to manage, and when, on top of that, an emergency comes up: like the smell of gas in the building (leading nine members of the fire department to stomp into my apartment, silencing even Cricket, and then they turned off the gas for the whole building, for two weeks, while they checked the connections in every apartment), or the toilet leaking into the apartment below us (leading to a new wax ring and therefore a new toilet and new tiling because our toilet had been set in place with concrete, for some reason), the resulting invasion of workmen makes life even harder.

“Oy.”

            But, Mom has been doing better, and has had a string of good luck with new doctors who seem to know what they’re doing and care what she has to say. And the dogs both passed their yearly checkups with flying colors, and Ellie survived yet another dental cleaning and now has fresh clean breath, and I still love my work, and have tons of good things to watch on TV, and good books to read, and good food to eat…

            And I feel like I should be celebrating all of this good fortune, but I don’t have the energy. So I keep trying new probiotics, in case the gut microbiome is the source of all disease (as Facebook keeps telling me), and I keep trying new breathing exercises and yoga poses and guided meditations, in case a calm mind really is a healthy mind (again, Facebook), and I hug the puppies, and I take my naps, and I read my mysteries. Because what else can I do?

“Bark. At everyone.”

If you haven’t had a chance yet, please check out my Young Adult novel, Yeshiva Girl, on Amazon. And if you feel called to write a review of the book, on Amazon, or anywhere else, I’d be honored.

            Yeshiva Girl is about a Jewish teenager on Long Island, named Isabel, though her father calls her Jezebel. Her father has been accused of inappropriate sexual behavior with one of his students, which he denies, but Izzy implicitly believes it’s true. As a result of his problems, her father sends her to a co-ed Orthodox yeshiva for tenth grade, out of the blue, and Izzy and her mother can’t figure out how to prevent it. At Yeshiva, though, Izzy finds that religious people are much more complicated than she had expected. Some, like her father, may use religion as a place to hide, but others search for and find comfort, and community, and even enlightenment. The question is, what will Izzy find?

Oral Surgery, finally

            After Mom’s emergency second hip surgery, to revise the hip replacement that was put in two months earlier, my oral surgery was rescheduled to late August. I already had my medical clearances in place, and all of the medications I’d need for before and after the surgery, and the oral surgeon had already given me a rundown of what to expect after surgery: like, bleeding from the nose, swelling of the sinuses, bruising on my face, and a possible lisp because the temporary (3D printed) implant would leave a small space between the device and my gums. Oh, and I wouldn’t be allowed to blow my nose, or accidentally sneeze, for three weeks, because that would make the swelling worse.

“I know how to avoid sneezing.”

            My biggest fear leading up to the surgery itself, though, was the anesthesia. The surgeon had told me that they wouldn’t decide until the day of the surgery whether I’d be getting sedation or general anesthesia. He was voting for general anesthesia, because it would make his life easier, but I thought sedation might mean I could avoid having a foreign object shoved down my throat, so I was hoping for sedation. When I finally spoke to the anesthesiologist, a few days before the surgery, she told me that I’d have a tube down my throat either way, to protect my airway, and that general anesthesia would be better for the surgeon and easier on my throat. And I’d be unconscious when she put the tube in and took it out, so that might mitigate my fear of choking. I hoped she was right.

Then she asked me, with no warning, if I had access to an adult undergarment, i.e. depends, because if not they could supply one for me when I got there. What?! She said that I might pee under anesthesia and everyone would prefer it, including me and the staff, if I didn’t leave a puddle.

Eek!

First of all, no, I don’t have adult undergarments hanging around on a shelf – except for Cricket’s adorable pink reusable diaper from her incontinence episode, which would just about fit over my hand. Second, how did no one think to mention this to me ahead of time? Or maybe they kept it quiet because they thought this would be the deal breaker. As it is, the adult undergarment became my number one preoccupation for the whole weekend leading up to the surgery – who cares about pain! What if I pee on myself?!

When I met the anesthesiologist in person, she was lovely and friendly and way too energetic for someone who was about to put me to sleep. She gave me the adult undergarment to change into in the bathroom, under my loose clothing (aka pajamas), and then I was whisked into the surgical suite, where my legs were wrapped in anti-blood clot sleeves, and monitors were attached to my fingers, and my hair was covered with a surgical bonnet so it wouldn’t get sticky (?!), and then a needle was put into the back of my hand, and then I have no idea.

I woke up in the same room, with the same people removing the things they’d attached just seconds before (though I found out later that five hours had passed). Most of my thoughts when I first woke up, strangely enough, were in Hebrew. Where’s Mom? What happened? When can I go home? I couldn’t actually speak yet, because my mouth was filled with gauze, and my throat was rough, and I had ice packs wrapped around my face, but I found myself translating everything into English anyway, as if they could hear me and answer me. The closest I came to being able to communicate was a grunt or two and a thumbs up or down, though as I was leaving in my wheelchair the surgeon decided to give me a fist bump.

I don’t really remember the trip home, except that Mom brought out her rarely-used walker and our neighbor, the nurse, to help me walk from the car up to the apartment. I spent the rest of the evening in front of the TV, changing out the bloody gauze until my mouth stopped bleeding (mostly), and going to the bathroom every twenty minutes (I couldn’t find an explanation for the excess peeing online, especially since I could barely sip enough water to take my pain meds, but it receded along with the excess bleeding).

I didn’t sleep much that first night, because my nose kept running – the surgeon said it was fluid from my sinuses, and blood, rather than traditional snot, but either way it made it hard to breathe – and I had to refreeze the ice packs for my face constantly, and my mouth hurt, and every time I moved my head it all hurt even more. I was able to take the dogs out the next morning, though, wearing a loose face mask to try and cover my swollen cheeks, but I managed to forget my house keys and had to ring the doorbell for Mom to let us back in anyway.

The pain was so much worse than I’d been expecting, so I had to give in and take some of the oxycodone I’d been prescribed, but mostly I survived on ibuprofen and ice and the coziness of my puppy pile.

To make things worse, it turned out that my Mom, who had been having trouble breathing over the weekend and assumed at first that it was just an allergy thing, went to the doctor on my first day post-surgery and started treatment for a possible case of Pneumonia. The next day she went for a chest x-ray, which ruled out pneumonia, which meant that on my second full day post-surgery I was driving Mom to the emergency room so they could rule out a blood clot. She stayed in the hospital overnight, getting all kinds of tests, and was told that she had fluid in the right lobe of her lungs and some kind of hardening of the lung tissue, which would be investigated further with a Bronchoscopy (under general anesthesia, a week later, just to keep things fun).

The next day, while Mom was still finishing up her tests at the hospital, I drove myself back to the surgeon’s office to have my temporary implant put in. By then my cheeks were starting to deflate and had turned all sorts of interesting colors, but my face mask allowed me to feel largely invisible, until I had to take it off to be examined by various assistants. There was a lot of sitting and waiting, between examinations, and then the surgeon screwed in the temporary implant, using what seemed to me like a tiny Allen wrench. He made sure to tell me not to swallow anything during the procedure, which was helpful, because when he was finished screwing everything in place there was still one tiny screw sitting on my tongue.

When I got home, I wrapped my face in ice again (they gave me a cool little headband that wraps around my head, with pockets for the ice packs, which was much more comfortable than holding ice packs on my face with both hands), and I watched the recording of my online Hebrew class a day late, so jealous of everyone on the screen. Mom came home with updates on her hospital stay and then it was nap time, for everyone, puppies especially.

“Sorry, Mommy. No room for you.”

Each day the pain and swelling has receded a bit more, and I’ve started to figure out how to chew with my new teeth, and how to deal with the temporary lisp (ignore it). The freezer is filled with bought and homemade soft foods, like soups and casseroles, and, of course ice cream, so there’s a lot to look forward to. And when the permanent implant comes, in a few months, it’s supposed to fit better than the temporary one (eliminating the lisping issue), and be made of stronger material (to allow me to eat more than just soft food), so if I can make it through the next few months with some self-esteem left, I should be okay long term.

And pretty soon, I’ll be back in front of the classroom, with no time to worry about how weird I look or sound, because the kids will have so many more important things to focus on, like: He pulled my hair! She stole my favorite pencil! Can I go to the bathroom, even though I just went five minutes ago and I’m definitely not looking for an excuse to wander around the building, please?!

Wish me luck!

“Are you going away again?!

If you haven’t had a chance yet, please check out my Young Adult novel, Yeshiva Girl, on Amazon. And if you feel called to write a review of the book, on Amazon, or anywhere else, I’d be honored.

            Yeshiva Girl is about a Jewish teenager on Long Island, named Isabel, though her father calls her Jezebel. Her father has been accused of inappropriate sexual behavior with one of his students, which he denies, but Izzy implicitly believes it’s true. As a result of his problems, her father sends her to a co-ed Orthodox yeshiva for tenth grade, out of the blue, and Izzy and her mother can’t figure out how to prevent it. At Yeshiva, though, Izzy finds that religious people are much more complicated than she had expected. Some, like her father, may use religion as a place to hide, but others search for and find comfort, and community, and even enlightenment. The question is, what will Izzy find?

The Paw Paws Are Growing

            In the midst of a lot of drama this summer (doctor visits and surgery and jury duty, oh my!), I’ve been keeping my eye on the paw paw tree for a sense of hope and stability. And it’s been working. We have eight or nine paw paw fruit on our tree, some in pairs but mostly singles, and every week they grow a little bigger as if they’re being inflated by a bicycle pump when I’m not looking.

            I don’t visit the tree each time I walk the dogs, because I follow the shade wherever I can find it and sometimes the tree is in full sun (good for the tree, bad for me, and my heat intolerance and tendency to sun poisoning), but I check on it at least once a day, and carefully duck under branches and around paw paw leaves to look at the growing fruit.

            It helps to have a calm, gradual, positive thing in my life, while I have to do a lot of things that are (way) out of my comfort zone. The paw paw tree has been that reassuring thing this summer – that, and the dogs: Ellie’s sweet, loving face when she cuddles up next to me and asks for head scratchies, and Cricket’s great joy when she sees Kevin, the mini Golden Doodle, coming her way. The good things don’t make the bad things (the news) or the scary things (surgeries) go away, but they give me the strength to keep going, and I feel so lucky for that.

If you haven’t had a chance yet, please check out my Young Adult novel, Yeshiva Girl, on Amazon. And if you feel called to write a review of the book, on Amazon, or anywhere else, I’d be honored.

            Yeshiva Girl is about a Jewish teenager on Long Island, named Isabel, though her father calls her Jezebel. Her father has been accused of inappropriate sexual behavior with one of his students, which he denies, but Izzy implicitly believes it’s true. As a result of his problems, her father sends her to a co-ed Orthodox yeshiva for tenth grade, out of the blue, and Izzy and her mother can’t figure out how to prevent it. At Yeshiva, though, Izzy finds that religious people are much more complicated than she had expected. Some, like her father, may use religion as a place to hide, but others search for and find comfort, and community, and even enlightenment. The question is, what will Izzy find?